I am sharing our favorite organizations that help us with medical travel by assisting with airfare, accommodations, and even grants. You can help us celebrate AB’s 3rd Birthday by donating to one of them in her name.

Sharing some basic information about essential oils, how we use them, and how you can get your hands on some!!

Sharing our favorite DIY Bug Spray that actually works!! It’s Non-toxic, safe for kids, and made by Addie Belle!

We are sharing all the tips for traveling to Walt Disney World with medical or special needs. Where to stay, how to plan days at the parks, how to take advantage of all the accommodations this magical place has to offer, & more!

She Got Guts is sharing her list of essentials needed for Preschool! List includes lunch essentials, clothing essentials, & more!

Going to the doctor can be scary for your little one! She Got Guts is sharing all her favorite books about going to the doctor to help your kiddo be a little less afraid!

She Got Guts is sharing how to potty train your little one in 3 days! Some other important topics covered; 6 Signs They May be Ready, How to Determine Reinforcement, How to Prepare Your Space, What Stuff You Need , The Method, & Adaptations for kids with GI issues, Developmental Delays, & Autism. www.shegotguts.com

Today I am sharing all the reasons you should be creating a garden with your kids while also making sure they are protected from the sun!

She Got Guts is sharing all the basics about Weighted Blankets. A weighted blanket is a therapeutic tool to help you or your child feel calm with an organized sensory system by providing proprioceptive input.  Learn more about what it is & why it’s so good!

Being in the hospital with your toddler stinks, but I am going to show you how to make the best of it by sharing our favorite toys. Because when life gives you lemons…

Medical hardships demand time, money and emotional strength for a long period of time. The transportation, basic living expenses, therapies and special education needs are not often covered by insurance and take a lot of time away from both work and family.  Learn about an incredible organization helping to ease the burden for families like ours.

Every picture tells a story, but some pull us in more than others. They make us wonder what hilarious or heartbreaking thing just happened, and or ponder what’s about to happen next. I wanted to tell our story through our photographs taken during our last inpatient admission at Boston Children’s Hosptial.

Stephanie from She Got Guts is answering all your questions about AB’s Central Line or Broviac Catheter.

Medical Dad's are often unmentioned, underrepresented, and underappreciated.  But today, I want to share some of the kick a#$ things you do to take care of our medically complex girl.

We are sharing 20 ways you can help increase language for your little one at home!

As I see Addie grow, learn, change, and explore each new day - I know exactly who is responsible for it. I'm not there all the time. I can't be with her every waking hour. But Steph is. And as I sit there every day, amazed at how far Addie has come, I can't help but be thankful that she has the mother she has. Our child is fearless. Our child has a fire for life. Our child is smart as a whip. Our child perseveres. Our child loves. Our child laughs. Our child is who she is because of her mother.

This is part one of my Ultimate List of Sensory Toys and today I am sharing my favorite toys and activities to give your kid Vestibular Input. These activities are good for ALL children but especially children with sensory processing difficulties.

She Got Guts shares a favorite appetizer that takes only 10 minutes to prepare, Hot & Cheesy Taco Dip.

She Got Guts shares our favorite bath time toys & products for toddlers!

I wanted to share a Sensory 101; what is it, why is it important, how can we integrate sensory activities into play, , sensory processing disorder, how preemies are impacted, (my daughter was a micropreemie) and what to do if you have concerns. 

I am sharing the  basics of Fine Motor Skills; what they are, why they are important, developmental checklists by age, and what to do if you have concerns. 

We share the behavior techniques that work for our toddler and how our life is better since we stopped saying NO!

We spent a freezing and windy winter day in Cambridge with our toddler and had the best time so I thought I would share 5 Things to Do in Cambridge (with a toddler in the winter)!

Idea for a $5 Toddler Toy that can be used to work on cognitive and language skills.

I wanted to share a few things I have gotten lately for my house, a few things for Addie (including her entire Easter outfit for under $50), and share my addiction to Adeline's favorite color, "target red." 

A list of Candy Free Easter Basket Gift Ideas for Toddlers on Amazon that are fun, creative, and educational. Perfect for children ages 1-4.

I’m a mess.  A crying, blubbering, oversensitive mess.  I know this pales in comparison to what we’ve been through, but it feels like my heart is breaking.  I know it’s the right decision, I know I’ll get over it, but I’m mourning it all the same. 

Hey friends! I get so many questions about Adeline's feeding tube, so I thought I would compile them all into one place.  If something is not covered here, please reach out to me because I would love to hear from you.

Dressing a child with a feeding tube comes with its challenges.  Where does the tube go once the clothes are on?  If you have to access the tube, do you have to undress them completely? When they become mobile, how do they carry their own feeds?  If it's hot, how do you keep the formula at the right temperature?  I've been rigging clothing myself by cutting holes in her clothes, I limit the types of clothes she wears, only button up pajamas, no zippers please, etc.  But it's not perfect, the hole gets wider with wear and I cannot sew like some of these creative tubie Mamas. I decided to check out some brands that make adapted clothing and other feeding tube accessories to make our lives easier and make our kids safer.