She Got Guts
blog home
family motherhood shop travel
collaborate FAQs our story
behavior communication feeding fine motor sensory social skills technology
central line feeding tube hospital life medical devices prematurity
blog about collaborate FAQs our story home
She Got Guts
early intervention behavior communication feeding fine motor sensory social skills technology family medical central line feeding tube hospital life medical devices prematurity motherhoodshoptravel

 

Featured
Organizations that help us with medical travel
Sep 11, 2018
Organizations that help us with medical travel
Sep 11, 2018

I am sharing our favorite organizations that help us with medical travel by assisting with airfare, accommodations, and even grants. You can help us celebrate AB’s 3rd Birthday by donating to one of them in her name.

Sep 11, 2018
11 Tips for Traveling to Disney (with Medical Needs)
Aug 29, 2018
11 Tips for Traveling to Disney (with Medical Needs)
Aug 29, 2018

We are sharing all the tips for traveling to Walt Disney World with medical or special needs. Where to stay, how to plan days at the parks, how to take advantage of all the accommodations this magical place has to offer, & more!

Aug 29, 2018
15 Books for Kids about the Doctor
Aug 16, 2018
15 Books for Kids about the Doctor
Aug 16, 2018

Going to the doctor can be scary for your little one! She Got Guts is sharing all her favorite books about going to the doctor to help your kiddo be a little less afraid!

Aug 16, 2018
Favorite hospital toys for your toddler
Jul 17, 2018
Favorite hospital toys for your toddler
Jul 17, 2018

Being in the hospital with your toddler stinks, but I am going to show you how to make the best of it by sharing our favorite toys. Because when life gives you lemons…

Jul 17, 2018
Little Superheroes Medical Grant
Jun 26, 2018
Little Superheroes Medical Grant
Jun 26, 2018

Medical hardships demand time, money and emotional strength for a long period of time. The transportation, basic living expenses, therapies and special education needs are not often covered by insurance and take a lot of time away from both work and family.  Learn about an incredible organization helping to ease the burden for families like ours.

Jun 26, 2018
Our Life Through the Lens: Boston Children’s Hospital Admission
Jun 22, 2018
Our Life Through the Lens: Boston Children’s Hospital Admission
Jun 22, 2018

Every picture tells a story, but some pull us in more than others. They make us wonder what hilarious or heartbreaking thing just happened, and or ponder what’s about to happen next. I wanted to tell our story through our photographs taken during our last inpatient admission at Boston Children’s Hosptial.

Jun 22, 2018
Frequently Asked Questions - Central Line Edition (Broviac)
Jun 20, 2018
Frequently Asked Questions - Central Line Edition (Broviac)
Jun 20, 2018

Stephanie from She Got Guts is answering all your questions about AB’s Central Line or Broviac Catheter.

Jun 20, 2018
Top 10 Tips for Traveling with TPN
Jan 18, 2018
Top 10 Tips for Traveling with TPN
Jan 18, 2018

Traveling with a medically-complex person is a lot of work. It can be overwhelming and sometimes terrifying.  This past May we took our first family vacation to Cabo Rojo, Puerto Rico with a toddler who’s on both Parental and Enteral Nutrition.  Although I knew we needed a break, time to get away, quality time together as a family - I was scared #af!  I’d be a complete hypocrite if I said I didn’t think about canceling the trip 100 times.  When we left the runway, with her home team getting smaller and smaller behind us, I felt a combination of anxiety and nausea.  Scary stuff. 

Jan 18, 2018
10 Reasons Why We Love Gus Gear
Jan 10, 2018
10 Reasons Why We Love Gus Gear
Jan 10, 2018

Having an infant and now toddler with TPN presents many challenges.  One of the most stressful can be keeping her line from pulling.  Ask any mom with a toddler who moves on TPN and they will tell you its rough! After 7 line breaks in 13 months we knew something needed to change.  We started using Gus Gear Central Line Wrap and it made a  positive difference in our life.  Not only has it reduced stress, it has increased Addie's safety and make sure she is better protected.  I wanted to share why we love Gus and Gear and why every child with a central line should have one...or a few! 

Jan 10, 2018
How to be a Fierce Medical Advocate for Your Child
Oct 18, 2017
How to be a Fierce Medical Advocate for Your Child
Oct 18, 2017

Having a child with complex medical needs is never the plan, but rather something into which you’re thrown, head first.  When you have a child like Addie, it’s important that you advocate for her ferociously. My role as an advocate for her started in the NICU -It was the first time I really thought that I needed to question the plan. These professionals weren’t seeing what I was seeing.  I needed to voice my concerns.  It was at that moment I stepped into the role as mother AND advocate, and I haven’t stepped out since!

Oct 18, 2017