Sharing some of our Must-Haves for every Tubie; adaptive clothing, feeding tube backpacks, our favorite tubie pads, travel IV pole, and more, (I have discount codes!!) .
Eating foods by mouth is a challenge in our house and we are always trying to make this more successful for our daughter. I am sharing my new favorite plate we are using to increase the variety of food and decrease picky eating!
I am sharing our new favorite medical device for tubies, the FreeArm! What is it? How was it Created? How is it changing our life?
Dressing a child with a feeding tube comes with its challenges. Where does the tube go once the clothes are on? If you have to access the tube, do you have to undress them completely? When they become mobile, how do they carry their own feeds? If it's hot, how do you keep the formula at the right temperature? I've been rigging clothing myself by cutting holes in her clothes, I limit the types of clothes she wears, only button up pajamas, no zippers please, etc. But it's not perfect, the hole gets wider with wear and I cannot sew like some of these creative tubie Mamas. I decided to check out some brands that make adapted clothing and other feeding tube accessories to make our lives easier and make our kids safer.
Having an infant and now toddler with TPN presents many challenges. One of the most stressful can be keeping her line from pulling. Ask any mom with a toddler who moves on TPN and they will tell you its rough! After 7 line breaks in 13 months we knew something needed to change. We started using Gus Gear Central Line Wrap and it made a positive difference in our life. Not only has it reduced stress, it has increased Addie's safety and make sure she is better protected. I wanted to share why we love Gus and Gear and why every child with a central line should have one...or a few!