Traveling with a medically-complex person is a lot of work. It can be overwhelming and sometimes terrifying. This past May we took our first family vacation to Cabo Rojo, Puerto Rico with a toddler who’s on both Parental and Enteral Nutrition. Although I knew we needed a break, time to get away, quality time together as a family - I was scared #af! I’d be a complete hypocrite if I said I didn’t think about canceling the trip 100 times. When we left the runway, with her home team getting smaller and smaller behind us, I felt a combination of anxiety and nausea. Scary stuff.Read More
The reason for the Patriots' superiority is immediately evident. The reason for Boston Children's is as well. I won't spend any time bashing Hopkins. They're an incredible hospital, that does great things for their patients. We're lucky that we've been close enough to have Addie's care handled by their team. They've gotten us through countless surgeries, put her on a path of growth, and have been there many times when we've needed them.
But just as the Dolphins aren't the Patriots, Hopkins is not Boston.Read More