Parents of children with feeding disorders or difficulties can undergo debilitating stress surrounding food, mealtimes, eating, and even social gatherings where food is served. Each family is different, and their journey is unique. Children can be fed and get their nutritional needs met through a variety of ways.Read More
I was officially a brand-new, single mother to a 36-week preemie. I was terrified, exhausted, overjoyed, sad, happy, confused and wondering how on earth I was ever going to make this work. I knew that I would be going through my pregnancy – and motherhood – alone, but the moment was finally here. Grace was here. And I was the only person she had. The next 10 days in the NICU with Grace were the longest days of my entire life. Despite how hard they were, though, I can promise you this: Being there as a single mom for Grace in the NICU made my love for her grow tenfold – and it was the most rewarding experience I’ve ever had.
We're at a point where we're also realizing that things may not be sunshine and roses when she comes home. That the ride we're on may not be over. That preemies like her still require much more than the giants down the hall. When we've asked the doctors about coming home for Christmas, they've given us the caveat that it's likely that she'll go home with oxygen support. And that tomorrow, at the end of her 35th week, if she's still on oxygen, she'll be officially diagnosed with chronic lung disease.Read More