Posts tagged shortgut
9 Ways HPN has Impacted Our Life

Because of injuries she had to her gut in her early life (NEC, colonic stricture, malrotation/volvulus), Addie has short bowel syndrome. This causes most of the issues she has with eating and growing and even with the feeding tube and an elemental formula, she can’t tolerate enough calories to grow and she gets sick if we try to give her enough through the tube to support her growth.   Aside from volume tolerance issues, she’s unable to absorb all the calories, nutrients, vitamins, and minerals she needs through her digestive system.  Even when receiving more than enough calories via feeding tube, because of lack of absorption, she is malnourished and her cells are “starving”.  The clearest and grossest example of her issues is that every type of solid she eats by mouth goes in and comes out in her diaper, not broken down at all.  If she eats 4 bites of carrots, and you will see 4 bites of carrots in her diaper.  Addie needs PN to grow, physically and cognitively.  The biggest reason she needs parental nutrition is to live, it’s literally and figuratively her life line. 

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