Posts in Family
A Letter to My Wife, On Mothers Day

As I see Addie grow, learn, change, and explore each new day - I know exactly who is responsible for it. I'm not there all the time. I can't be with her every waking hour. But Steph is. And as I sit there every day, amazed at how far Addie has come, I can't help but be thankful that she has the mother she has. Our child is fearless. Our child has a fire for life. Our child is smart as a whip. Our child perseveres. Our child loves. Our child laughs. Our child is who she is because of her mother.

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Make your own "Table Train"

My kid loves trains. She’s fascinated with them. There’s a cargo line that runs past our house and the train comes through once or twice a day. It’s a ritual now that whenever we hear the whistle of the oncoming train, we run, frantically out onto the porch to wave to the train and watch it pass. Everyone knows it. When that whistle blows, even JPEG loses his mind, barking, and scrambling to the front door. Addie’s face lights up, one part joy, one part fear that she’ll miss it, one part complete shock. She stops what she’s doing, instantly, and sprints for the door.  So I decided this year to make her a train table!

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Most Memorable Moments of 2017

Whelp...another year has gone by.  To be completely cliche, the days are long, but the years are short.  It's unbelievable to me that I have spent three New Years' with Addie Belle in my life.  I feel like any year can have it's ups and downs, but I think when you have a child with medical complexities you get a few extra challenges thrown your way.  It can feel unfair, isolating, sad, make you feel envious of those around you living "typical lives" and dealing with teething and tantrums, it can make you feel angry, and disconnected from the rest of what's occurring in the world, and in your friends' and family's lives.  Living life with a child with medical needs means I never really sleep and makes it feel like we never get a break. 

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Pumpkins to the Wall, A Taste of "Normalcy"

I’ve always thought it was the subtle touches that really make the costume. Don’s cane and the pillow stuffed under my shirt. Linda’s dress in a dry-cleaning bag and the tape recorder. Mr. Rogers’ puppet and the Sperrys. Stevie’s keyboard and minimal crustache. The tap lights for eyes on the Droid.

When it comes to costumage, I’m a bit obsessive, always looking for those perfect accoutrements that really complete the ensemble.

And while my love of All Hallow’s Eve hasn’t waned, since 2015, my costumes have taken sharp right turn. They’re headed in a direction that likely won’t change foreseeable future.

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