I wanted to share a few things I have gotten lately for my house, a few things for Addie (including her entire Easter outfit for under $50), and share my addiction to Adeline's favorite color, "target red."
Dressing a child with a feeding tube comes with its challenges. Where does the tube go once the clothes are on? If you have to access the tube, do you have to undress them completely? When they become mobile, how do they carry their own feeds? If it's hot, how do you keep the formula at the right temperature? I've been rigging clothing myself by cutting holes in her clothes, I limit the types of clothes she wears, only button up pajamas, no zippers please, etc. But it's not perfect, the hole gets wider with wear and I cannot sew like some of these creative tubie Mamas. I decided to check out some brands that make adapted clothing and other feeding tube accessories to make our lives easier and make our kids safer.
Having an infant and now toddler with TPN presents many challenges. One of the most stressful can be keeping her line from pulling. Ask any mom with a toddler who moves on TPN and they will tell you its rough! After 7 line breaks in 13 months we knew something needed to change. We started using Gus Gear Central Line Wrap and it made a positive difference in our life. Not only has it reduced stress, it has increased Addie's safety and make sure she is better protected. I wanted to share why we love Gus and Gear and why every child with a central line should have one...or a few!
One of the things people ask me about most often is, How did you get Adeline to talk? or What toys do you like to get your toddler to talk? At 14 months old, Addie was not talking, she was only babbling "mama" so we began our journey of speech therapy. After 10 years as a special educator, and 2 years working with my own daughter with language delays, I wanted to share what I've learned along the way. I've come up with a list of my favorite toys to get your toddler talking, explained how to play with it, and what skills you can work on while playing.
About a year ago, Adeline began brand repping for her shop and it gives me the perfect excuse to keep the happy mail from her coming and help support a brand I love. It doesn’t hurt that my husband loves her Team Spirit Miami Dolphin bows, since she gets the color just right. It September, KRZA participated in my NICU Awareness project by participating in our giveaway and created a purple Bebe Bow set in honor of Preemie Babies in which she donated a portion of those proceeds towards Adeline’s NICU. Because of this, she will always hold a special place in my heart.
Reading is one of the things we do together at least twice a day, and it started when she was in the NICU. Born at 26 weeks, Adeline spent 114 days in intensive care and there were very few ways to connect. One of the ways we connected, especially my husband, was to read to her for hours a day. Each night when he would get done work, I would do kangaroo care while my husband would read and read. SInce she came home we've continued and we came up with a list of A.Belle's Best Board Books every Baby Needs!
This September for NICU Awareness Month we teamed up with several small shops to spread awareness through social media posts, created items inspired by preemies, having a giveaway, and also raising money for Sinai NICU, where Addie Belle spent 114 days. Some of these shops went the extra mile and participated in all facets of our collaboration, and most importantly made donations to Adeline's NICU from the proceeds of the items they sold. One of these shops was From Mini to Moose, who could not be a better business to collaborate with for #NICUawarenessmonth.